Meet Jack Rowe of Deer Lake, NL
The emotional and logistical strain on families facing a child’s serious illness is immense which for many families is compounded by their distance to medical care. Ronald McDonald House plays a vital role by providing not just a place to stay, but also a supportive environment that helps families stay close to their child and focus on what truly matters—getting them well. Ronald McDonald House keeps families with a sick child together and near the medical care they need, when they need it the most.
Four year old Jack Rowe faced his first metabolic crisis at 10 months old after a prolonged viral illness that led to severe dehydration and lethargy. With alarmingly high lactate levels and low bicarbonate, he was admitted to the hospital in Corner Brook before being airlifted to St. John’s, where the family was advised to prepare for the worst. Jack was later diagnosed with TANGO2 disease, which is a genetic condition that can lead to seizures, which may cause brain damage, and it can also result in severe and potentially life-threatening heart rhythm abnormalities. It is a rare genetic condition . There is no cure. The fear and uncertainty of this rare condition was compounded by being seven hours from their home and extended family in Deer Lake.
“When a social worker suggested Ronald McDonald House as a place to stay during Jack’s critical time, we were profoundly relieved to find not only accommodations but also a comforting community of support during a time we feared we’d spend it apart. “ said Rebekah, Jack’s mom.
The Rowe Family David, Rebekah, four year old Jack and his seven year old big brother Charlie
When Jack is affected by a virus or other illness, the family must remain on high alert and closely monitor his condition to prevent a potential metabolic crisis. This vigilant oversight is crucial to manage any complications and ensure his health and safety.
“We could never have received the same level of care and support anywhere like we did while staying at Ronald McDonald House. The proximity of the home to the hospital was precisely what we needed during this challenging time. Everything was thoughtfully provided, from the warm welcomes at the front door, to the comfortable rooms and nourishing meals. Our family was able to stay together, feeling both welcomed and understood during the most frightening times of our lives. “ continued Rebekah.
While Jack’s medical journey is far from over, the Rowe Family have come to depend on the programs and services at Ronald McDonald House. Despite the families best efforts to prevent another metabolic crisis, the diagnosis of TANGO2 means there remains a possibility of such an event. Each year, Jack will have to continue with medical appointments in St. John’s.
“The support provided by Ronald McDonald House is invaluable, as it helps us navigate the ongoing challenges and uncertainties of Jack’s condition. “ said Rebekah.
